| The Comments |
I was pleased to be reminded of Emmas need for donations when Fibby made this post.
Our place in Spain is not completed yet and so we are not ready for one of Fibbys Famous (Tax) Forms. If (like us) you too are not needing Fibbys tax form at present, and would like to make a donation, just follow the link below to Emmas website and you can make a direct donation on -line as I have just done.
All you need is a credit card or PayPal account.
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That's brilliant Sandra, well done!
Emma is doing really well, she has a scan coming up soon to check if the cancer is still gone, so fingers and toes crossed for her.
Thanks again
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FibbyUK
One off fee to pay your own La Renta tax (210 Form)
Check out my website:
http://www.payingtaxesinspain210form.pwp.blueyonder.co.uk/
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My cousin had neuroblastoma when she was about 2 years old, she is now 23 (I think!!). It was a terrible time for all involved and after years of travelling to Great Ormond St every year for checks, she finally got the all clear 2 years ago. There is a light at the end of the tunnel  .
Mark
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That's an encouraging story Marksfish, I hope she continues to be cancer free.
It's an awful thing for anyone to go through, let alone a child.
Kind regards,
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FibbyUK
One off fee to pay your own La Renta tax (210 Form)
Check out my website:
http://www.payingtaxesinspain210form.pwp.blueyonder.co.uk/
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I continue to donate!
This time £20 for Emma's fund
A big thank you to:
Adass S
Neale O
Paula S
Pat & Cheryl H
Sean B
My Paypal receipt:
Transaction ID: 1004799906473453W Placed on 27 Oct. 2007
Payment For Quantity Price
Baby Emma's Appeal - Every Penny Helps! 1 £20.00 GBP
Subtotal: £20.00 GBP
VAT: £0.00 GBP
Total Amount: £20.00 GBP |
_______________________
FibbyUK
One off fee to pay your own La Renta tax (210 Form)
Check out my website:
http://www.payingtaxesinspain210form.pwp.blueyonder.co.uk/
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Hi All,
I hope I didn't miss anyone?!
I recently sent out an e- mail to everyone who has bought a Guide.
This gave full instructions on obtaining the Pagatinas for the 214 Tax Form.
If I missed you out, please either e-mail me or PM me and I will forward you the instructions.
Many thanks,
_______________________
FibbyUK
One off fee to pay your own La Renta tax (210 Form)
Check out my website:
http://www.payingtaxesinspain210form.pwp.blueyonder.co.uk/
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Thank you for buying a Guide:
A Patel
D Hopper
My donations to Emma's fund have now ended, as the good news is............the £200,000 target has been reached!
BUT.................I am now looking for another charity/good cause to donate to.
Please send me your suggestions either by e-mail or PM me....................
Back to Emma's progress......................
Emma continues to be well and the funds will be used as and when she needs treatment in America.
I had a lovely E-mail from her Dad Stephen Clittie, extracts of which are below:
Hello Sue,
At the moment we have reached our deposit target of £200,000 but we are waiting to get over to America to see them. We set out to get Emma to America within 90 days of transplant but due to complications, we never managed this.
When I went to America in August, the doctors told me that they wanted to do scans and test on Emma and this could of costed £10,000 plus, so we had the tests and scans done on the NHS for free in October and all came back clear so our doctors in the UK have said that we should use the American treatment as a relapse treatment. There is an 80% chance this cancer will come back!
Before we get to see the American doctors they want all the scans and test results from October, this is where the current hold up is as we have been waiting for 2 weeks for Alder Hey to give us these scans, we have been assured that we will have them by next week. When we recieve these we can forward them onto America and then an appointment will be made and then a decison will be made for the next step in Emma's treatment but until the doctors in America have seen Emma we don'tknow what is happening.
If Emma starts the anti-body treatment then we will start to fundraise again to help support on going treatment costs in America but until we know what is going on and the fact that we have raised the deposit amount, we have down scaled the fundraising ofr now.
Once again, I thank you from the bottom of my heart for your support over the last 12 months.
At the moment, Emma is so healthy and "full of beans" we hope and pray she stays this way.
Stephen Clittie
The Baby Emma Appeal
_______________________
FibbyUK
One off fee to pay your own La Renta tax (210 Form)
Check out my website:
http://www.payingtaxesinspain210form.pwp.blueyonder.co.uk/
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Surprised this thread hasn't been updated lately, with more recent news. Emma's grandad posted this Dec 30th on the other large forum used by many of our members, including FibbyUK.
"After a long delay Emma will be off to New York mid January, for her first consultation. "
Good luck to this little girl
From Emma's diary.. January 2008
Happy New Year Everyone!
What a busy week its been for me, I have been to 2 pantomimes and I have been busy playing with all the toys Father Christmas left for me. The first panto I went to was Cinderella at The Liverpool Royal Court. I was invited by Pete Price from Radio City when I won The Child Of Courage Award. I went with Mummy and Daddy and we had a magical time. When we got there, we met Jane Joseph, think she was the boss but she is a very nice and friendly person who looked after us all afternoon, we where told we could go backstage and meet everyone. The first person I seen was Mr Pete Price. He had his own dressing room and was with a nice lady from Radio City who interviewed us.
Mr Pete Price gave us the grand tour of backstage and I got to ride in Cinderella's carriage and I got to go on stage before the show started but all I wanted to do was meet Cinderella. Every time someone asked me a question all I said was "Cinderella, Where is Cinderella" this must of made a great interview for radio hehehe. The nice stage manager even turned the snow machine on, just for little old me!
Just before the show was about to start, Jane took us to our seats, we have an amazing view and I had lots of room to dance about. At the interval the stage manager came to us and asked if I would like to meet the real ponies before they went on stage, I jumped at the chance so we went backstage again and there where 2 amazing white ponies, I stroked them and asked Daddy if we could take them home, he said he will see.....am not holding my breath. I even asked if the ponies could come and sit next to me and watch the rest of the show but I think I was pushing my luck and they needed to be on stage anyway.
We went back to our seats to watch the 2nd half, Pete came on stage to say a few Hello's and Happy Birthdays but first of all he shouted my name out and asked me to wave to him and told everyone I was a very brave girl and that I was his guest for the day. This made me feel very special :D .
When the show had finished, Jane came and asked if we enjoyed ourselves and invited us backstage. Pete was there waiting for us and asked if we had a good time, he then said I could meet Cinderella and have my picture taken. I was lost for words when Cinderella asked if I enjoyed the show, first time for everything! We said thank you and then our goodbyes and left with smiles as big as the River Mersey.
That was a truly magical day and meeting Cinderella was the best, sorry Pete :P but thank you to everyone who made the day so brilliant.
Today I went to see Aladdin at Southport Theatre, this was made possible by CHICKS, who provided us with some tickets so thank you to everyone at CHICKS.
So apart from going to see panto, I have been playing with all my toys, the best toy is my baby monkey which I take everywhere with me and I feed it when I eat and I give it some of my bottle, when I have some.
Am really healthy, full of energy, enjoying life and am being a good girl for Mummy and Daddy, am back in hospital next week for a check up. I have finished round 4 so now I have 2 weeks off and am planning on enjoying it as much as I can.
Love Emma
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Quote:
morerosado
13 Jan 2008 2:19 PM
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Surprised this thread hasn't been updated lately, with more recent news. Emma's grandad posted this Dec 30th on the other large forum used by many of our members, including FibbyUK.
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This thread has not been updated by me, FibbyUK as there was no need to...........
I posted Emma's Father's response to an e-mail on various sites, suprised it was missed, but here it is for those of you that missed it:
Sun 25/11/2007 13:26
Hello Sue,
At the moment we have reached our deposit target of £200,000 but we are waiting to get over to America to see them. We set out to get Emma to America within 90 days of transplant but due to complications, we never managed this.
When I went to America in August, the doctors told me that they wanted to do scans and test on Emma and this could of costed £10,000 plus, so we had the tests and scans done on the NHS for free in October and all came back clear so our doctors in the UK have said that we should use the American treatment as a relapse treatment. There is an 80% chance this cancer will come back!
Before we get to see the American doctors they want all the scans and test results from October, this is where the current hold up is as we have been waiting for 2 weeks for Alder Hey to give us these scans, we have been assured that we will have them by next week. When we recieve these we can forward them onto America and then an appointment will be made and then a decison will be made for the next step in Emma's treatment but until the doctors in America have seen Emma we don'tknow what is happening.
If Emma starts the anti-body treatment then we will start to fundraise again to help support on going treatment costs in America but until we know what is going on and the fact that we have raised the deposit amount, we have down scaled the fundraising ofr now.
As for our forum, we had lots of problems with "bots" posting no family information and this got to much for us to control so we have closed for forum for now.
If you need to me to send you an email with the total amount you have raised then you can forward to your people or post on it your website then I would be more than happy.
Once again, I thank you from the bottom of my heart for your support over the last 12 months.
At the moment, Emma is so healthy and "full of beans" we hope and pray she stays this way.
I trust this clears this little "matter" up Morerosado.....................
My kind regards............as always..............
_______________________
FibbyUK
One off fee to pay your own La Renta tax (210 Form)
Check out my website:
http://www.payingtaxesinspain210form.pwp.blueyonder.co.uk/
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Whoops! Silly me!
Just seen my post below Morerosado's!
Knew I didn't forget to post on the MOST important site of all............EOS!
Here it is folks:
Thank you for buying a Guide:
A Patel
D Hopper
My donations to Emma's fund have now ended, as the good news is............the £200,000 target has been reached!
BUT.................I am now looking for another charity/good cause to donate to.
Please send me your suggestions either by e-mail or PM me....................
Back to Emma's progress......................
Emma continues to be well and the funds will be used as and when she needs treatment in America.
I had a lovely E-mail from her Dad Stephen Clittie, extracts of which are below:
Hello Sue,
At the moment we have reached our deposit target of £200,000 but we are waiting to get over to America to see them. We set out to get Emma to America within 90 days of transplant but due to complications, we never managed this.
When I went to America in August, the doctors told me that they wanted to do scans and test on Emma and this could of costed £10,000 plus, so we had the tests and scans done on the NHS for free in October and all came back clear so our doctors in the UK have said that we should use the American treatment as a relapse treatment. There is an 80% chance this cancer will come back!
Before we get to see the American doctors they want all the scans and test results from October, this is where the current hold up is as we have been waiting for 2 weeks for Alder Hey to give us these scans, we have been assured that we will have them by next week. When we recieve these we can forward them onto America and then an appointment will be made and then a decison will be made for the next step in Emma's treatment but until the doctors in America have seen Emma we don'tknow what is happening.
If Emma starts the anti-body treatment then we will start to fundraise again to help support on going treatment costs in America but until we know what is going on and the fact that we have raised the deposit amount, we have down scaled the fundraising ofr now.
Once again, I thank you from the bottom of my heart for your support over the last 12 months.
At the moment, Emma is so healthy and "full of beans" we hope and pray she stays this way.
Stephen Clittie
The Baby Emma Appeal
_______________________
FibbyUK
http://www.payingtaxesinspain.pwp.blueyonder.co.uk
Spam post? If so please click here to report it
_______________________
FibbyUK
One off fee to pay your own La Renta tax (210 Form)
Check out my website:
http://www.payingtaxesinspain210form.pwp.blueyonder.co.uk/
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Very, very well done Fibby!!
What a star you are!
And very well done for offering an 'olive branch'
So sad that it was ignored only for your name to be added in a way that only could be interpreted as extremely unfriendly!
We all miss your postings - you always have a very 'balanced view' in all that you contribute - please carry on contributing - always good to read your posts - can't believe you're not a 'Superstar' by now! However, you are in many members view!
Jilly
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Emma's grandad says she went to New York on January 16th for a week, maybe more if the docs want to start the treatment straight away.
Wonderful news.
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Congratulations Fibby on generating the contributions, not only through your Tax form but by regularly bringing this cause to the attention of a wider audience of potential contributors via your regular updates.
You should be really proud of yourself and, now that Emma is doing so well, feel that your efforts and support have contributed to her present well being. A worthwhile cause indeed and such wonderful results.
Now now Fibby, no blushing!!
Very well done.
.
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Blushing? Of course I am!
Thank you for your comments Sandra, I continue to follow Emma's progress.
Weird how you can get so involved even though I don't know Emma or have ever met her!
Emma is still in America and yesterday she had her MIBG scan.
I don't profess to know exactly what this is, so if anyone is interested, check out her diary here:
http://www.babyemma.co.uk/emmas%20diary/january_2008.htm
Things are still looking good for her and the chance she has been given in America, goes far beyond the investigations the UK offer.
I have been given ideas for other charities to support and am in the throes of deciding, so watch this space!
Kind regards,
_______________________
FibbyUK
One off fee to pay your own La Renta tax (210 Form)
Check out my website:
http://www.payingtaxesinspain210form.pwp.blueyonder.co.uk/
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Update 3rd February from Emma's grandad on behalf of Emma. WTG Emma  Terrific news, the BEST.
I'm home safe from New York, and most of all CANCER FREE! After having all the tests & scans (Bone Marrow, MIBG, CT, Urine and Blood Tests) I am now cancer free. These test where different to the ones in the UK, they seemed more advanced and more to try and find cancer in my body, In the UK they only test the bone marrow in 2 places, at MSKCC they tested 4 different places, all came back negative. The CT scan, I needed to drink a contrast drink before I had it, it makes the picture more clear and in depth. That came back all clear! and most of all the doctor said that my MIBG scan was really good and clear, which was amazing as back in October there was some up take that looked like progressive disease, however a CT showed nothing so it was great to see the pelvic area so clear.
So after 2 weeks of being poked with needles and getting put to sleep, I'm now home and very healthy, the doctors in New York want me to go back in 3 months time for the same test again, as they believe that if the nastyblastoma comes back then the earlier they catch it the better they can treat it, but its up to Mummy and Daddy how and where I get checked, but am not bothered because am going to have fun fun fun!!!!
Love Emma
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So good to hear the wonderful news about Emma..
Julia
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